If you are a regular reader you will notice that I changed the template of the blog just for November for Epilepsy Awareness Month. Check out the Epilepsy Awareness Tab to read all posts that have been posted about epilepsy, my story and others' stories, etc. If you or someone you love have epilepsy please email me your story at NextGenerationSAHM@yahoo.com stories can be anonymous and do not worry if you are not a writer I do not mind editing.
Please remember to read and share these stories with your friends and family to make them more aware of epilepsy. Coming from someone with epilepsy it means a lot! Also, please donate to the Epilepsy Awareness Foundation by clicking here for the blog donation page. We are trying to raise $1000 dollars for our goal for the month. Remember you can donate to the Epilepsy Awareness Foundation all year round and many places of work will contribute to your favorite charity. Please help us find more information and a cure for this condition.
I was extremely thrilled to be able to attend my first Epilepsy Foundation Fundraiser this past Saturday in Fayetteville, NC. The Epilepsy Foundation of North Carolina only has an office in Winston Salem, NC and North Carolina is a big state. It is rare that many of us living here with epilepsy are able to meet with others who have epilepsy and get access to resources and things going on that may be in a city near us.
Of course going to fundraisers is mostly about being able to tell our stories to others in hopes to inspire others who have the same condition. I always try to inspire in others the motivation to keep on pushing through all the tears, because people do support and care about you. I also enjoy inspiring others to DONATE to such an amazing organization as the Epilepsy Foundation. I am forever humbled at all the hard work that just this North Carolina branch does. They cover this entire state with one full time employee and a lot of volunteers. Luckily, they have an amazing and strong woman who is willing to get out there and fight to get DONATIONS for our cause.
|Sue Case who runs the Epilepsy Foundation of North Carolina|
This particular fundraiser on Saturday in Fayetteville was for their Medication Fund; which helps provide funding to epilepsy patients if they cannot afford their medication. I have had first hand experience with not being able to pay for certain epilepsy medications as some of them are over $200 for a month's supply.
One of the biggest reasons these types of fundraisers are done are to raise "Awareness". So many people assume that epilepsy is someone who sometimes falls on the floor in a full blown seizure and WE are so much more then that and there is much more to epilepsy than that.
Imagine the eight year old boy who has a seizure everyday and as a result has to be tutored at home and cannot play any sports and can barely be left out of the parents' sights. Or imagine the young girl getting ready to go to college but not sure how her weekly seizures will fit into her life's plan. Or the new mom who always is worried if she happened to have carried that epilepsy gene onto her child because as you probably do not know 70% of epilepsy cases have no cause and they do not also know if it is genetic or not. Now finally imagine that this is a condition that 1 in 25 people have, over 65 million in the world and 150,000 new cases each year in the United States alone. That is the true face of epilepsy. Those facts are real, those people are real and there are many more out there on varying scales. We need help. It is extremely hard to find a cure for an organ that we only use 10% of and, that is the organ we have to use to figure it out with. You can certainly see the need for fundraisers.
We really enjoyed ourselves at the fund raiser. Xavier enjoyed running around and bouncing on the mats. He even met Smokey the Bear. I met a blog fan who is now a friend, as well as meeting some pretty amazingly strong young ladies.
|New friends Hannah and Elaine, some amazingly strong women|
I was proud to have the privilege to meet all the great volunteers and people that did such an amazing job pulling off the fundraiser. Plus, we had a blast at the same time!
I am proud to have gone to the Epilepsy Foundation of North Carolina's Fayetteville Fundraiser because I know in so many ways I can make a difference. I can write, speak and Donate and so can you!
Special Thanks to The Climbing Place in Fayetteville for hosting such a wonderful fundraiser!
Statistics were taken from the Epilepsy Foundation website.